Ellie
Ellie is now 22 years old, she was born at 36 weeks by cesarean section and spent the following 4 weeks in the neo-natal unit. We eventually got a diagnosis of a micro-deletion of...
Author: Jay Varley
A Mothers Day Message..
Mothers day ..another excuse to get messy and do some home-made projects. This year we made some tissue paper flowers easy to make and lots of fun, we covered them in glue with glitter...
Sparrow legs part 1..
How do I start this? Jay asked me to write our story, but it’ such a long story as Talia is now 10 years old, so l will give you a short burst of...
Picking Daisies…
I often watch Grace and wonder what she is thinking or feeling. Grace goes about her days happy mostly, observing everything. Grace is a child that does not miss a thing. I did not...
An insight view from a carer.
I have known, and had the privilege of being Grace’s carer since she was 4 years old. From the first moment I saw her and that cheeky smile, I knew that she was a...
Christmas.
So Christmas this year was as magical as it could be… Grace woke up in a very good mood and really enjoyed opening presents. Previous years she hasn’t managed to open gifts independently but this year she...
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