Category: Stories

Stories and Posts from the families of people diagnosed with WHS.

William during COVID19 0

William during COVID19

Just making a relatively short contribution to keep everyone in the picture. So Will turned 24 last month, levelled off at 8 stone 3 pounds and is 5 foot 6 inches tall, which by...

Summer Holidays 0

Summer Holidays

Summer is nearly over. It seems like months rather than 6 weeks! Grace has been really bored this summer, its more difficult than ever taking all 3 children out mainly because Grace can be...

A thoughtful response 1

A thoughtful response

Today, I overheard a woman discussing the age of a mother of young children. She commented on how the mother seemed to be old for a mom of young children. “But at least her...

My experience having a tubie 0

My experience having a tubie

Darcy is now 16 months old and has been tube fed since birth. We always knew this would be the case due to her bilateral cleft lip and palate alongside her heart condition so...

Ellie 1

Ellie

Ellie is now 22 years old, she was born at 36 weeks by cesarean section and spent the following 4 weeks in the neo-natal unit. We eventually got a diagnosis of a micro-deletion of...

JUST WILLIAM 2

JUST WILLIAM

After a difficult pregnancy and 8 admissions into hospital with blood loss, William was born 9 days early at 4 lbs 14.5 oz. A tiddler compared to my first son, but perfect in every...

Sparrow legs part 1.. 0

Sparrow legs part 1..

How do I start this? Jay asked me to write our story, but it’ such a long story as Talia is now 10 years old, so l will give you a short burst of...

Nana of Jess 0

Nana of Jess

Jess was born 23rd June 2017, weighing 3lb 8oz, . She had a natural birth at 35 weeks . We had no idea of any problems apart from her slight premature and being very...

Hayden 0

Hayden

Hayden James… Part 1 Hayden (or he Pickle as he is known) was born at 38 weeks via planned c-section on 1st of July 2013 weighing 4lb 8oz. I know every mum never forgets...